CENTRONUCLEAR AND MYOTUBULAR MYOPATHY INFORMATION POINT
United Kingdom

Established March 2001

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About the Condition

Research Developments


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Acknowledgements

Links to Other Sites
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Samuels Boxes


Muscular Dystrophy Campaign


Joshua Frase Foundation


the NeuroMuscular Centre

more Links ......

Toni's Website


Since 17th August 2003

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Myotubular Myopathy Support Group

Myotubular Myopathy Resource Group

Wide World of Muscular Dystrophy

Neurological Centres

European Alliance of Neromuscular Disorders Associations

European Neuromuscular Centre
(See Workshop Report 118 of 2003 for Advances In Myotubular Myopathy)

Glaxo Neurological Centre

Neuromuscular Disease Center

The Walton Centre


Worldwide Muscular Dystrophy Associations

Muscular Dystrophy Association USA

Muscular Dystrophy Ireland

The Muscular Dystrophy Assoication of Canada

The Muscular Dystrophy Foundation of South Africa

Muscular Dystropy Netherlands

Muscular Dystrophy Australia

Muscular Dystrophy Family Foundation

Cruse Bereavement Care

Disability.gov.uk

Euromed Rehabilitation Centre

Face to Face Network - A Project supported by Scope
(Parents supporting Parents of Disabled Children

Ford Magic

Hammersmith Hospital

Harley Davidson

Harvard Neuromuscular Disease Project

James Hopkins Trust

Medicines and Healthcare Products Regulatory Agency

The Muscle Help Foundation

The Myotubular Trust

Nemaline Myopathy

Newcastle Muscle Centre / Institution of Human Genetics

Office of Rare Diseases

PleaseMiss.co.uk

Samuel's Boxes

Special Abilities

University of Wales College of Medicine
(Institute of Medical Genetics)

Whizz Kids

Winstons Wish

Genes and Genetics

BBC Gene Stories - The Basics of Being

Human Genetics Commission Website

DNA from the Beginning

Genes and Disease

Genetic Interest Group (GIG)

Genomics and its Impact on Medicine and Society: 2001 Primer

National Human Genome Research Institute

Human Genome Project Information

Preimplantation Genetic Diagnosis

The Wellcome Trust

Understanding Gene Testing



















































































































































































































































































































































































































































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