CENTRONUCLEAR AND MYOTUBULAR MYOPATHY INFORMATION POINT
United Kingdom

Established March 2001

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Since 17th August 2003

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In Memory

The tide recedes, but leaves behind bright seashells on the sand
The sun goes down but gentle warmth still lingers on the land
The music stops and yet echoes on in sweet refrains...
For every joy that passes something beautiful remains

~ Author Unknown ~


Samuel

Nathaniel

16 May 1998 - 17 December 1998

A life so young released to heaven, left on earth we wonder “why,”
But some are sent among us briefly, some have spirits meant to fly.



















































































































































































































































































































































































































































































































































































































































































































































































































































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